this is huge. it opens up many store bought foods for us.
we are so glad. hate that i am still a little bit skeptical.
for four years we have avoided anything that says soy like the plague as samuel is anaphylaxic to soy. and even this week his skin test was highly positive; RAST (blood test) score was literally off the charts high (along with peanut). so, it will take some time to get used to seeing the word soy and then buying it and then preparing it/feeding it to him.
clarification if you missed it from another post: the protein in soy lecithin and oil is removed in the process of creating the substances, so the body doesn't recognize it as soy, so therefore safe. sort of like how most peanut allergic folks can safely eat at chic-fil-a, which uses peanut oil.
my question is: if soy lecithin and soy oil are safe for soy allergics 99% of the time, why do we not know more about this and thus consume it!!??
he tested positive to almost all of the 35 things that were tested on the blood test, yet we will assume most are false positives since we eat them okay now. if the numbers are high and they correlate with strong positive on skin test we might think about testing those to see if his eczema flares.
tomorrow we will try wheat. the only big one we will do as his results to egg, milk, peanut and soy are extremely high and not even able to consider considering.
i really doubt we will pass wheat, but will be glad we tried.
thanks for reading and following all this confusing verbage.
6 comments:
So huge! So happy for you guys. Ashley, I am praying he will pass wheat. What a huge opening in the food department. Thanks for keeping us posted. I can only imagine the anxiety you must feel watching them feed your son "scary" foods-so thankful you are in a hospital and seem so calm!
Wow, that is encouraging!
Ashley, this is Leslie Poe and my husband Jonathan and I have been members at Redeemer for the past year. We haven't had much of a chance to get to know your family (I've had Samuel in the nursery a few times) but Dana shared the link to your blog and I just wanted you to know that we are praying for you! Thanks for opening my eyes to this unique struggle that so many families are facing!
All our love and prayers. Thinking about ya'll.
So so excited for you all! Sending you prayers for tomorrow and we can't wait till you guys come home!!
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